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CCI (formerly ICCCPO) works to build a world-wide community of childhood cancer organizations representing families of children with cancer and childhood cancer survivor groups. We share information and experience in order to improve access to the best possible treatment and care for children with cancer everywhere in the world. Complete the form to learn more.

Childhood Cancer NCD advocacy – an update

Combined lobbying efforts of international NGOs like SIOP, ICCCPO, NCD Alliance, UICC and others for children and adolescents with cancer

In 2012 ICCCPO and SIOP had sent two joint feedback papers to WHO (World Health Organisation). The first one was sent on 7th of September 2012, which was a feedback on the development of an updated ‘Action Plan for the Global Strategy for the Prevention and Control of Non-Communicable Diseases (NCDs)’ covering the period 2013 to 2020 (download first joint feedback). The second joint feedback paper was about the discussion paper on a “Comprehensive global monitoring framework” about NCD framework, targets and indicators with the last try to lobby for nations to cover also children and adolescents with cancer, which was originally excluded from the 1st target of 25% relative reduction in overall mortality of NCDs (download second joint feedback).

Together with the great lobbying effort of other international NGOs like NCD Alliance, UICC, and others, we are glad to see the final 9 global targets and 25 indicators adopted by nations at the 66th World Health Assembly in Geneva in May 2013 not to exclude children and adolescents with cancer. There is still a lot of work in the coming years for ICCCPO and global stakeholders of children and adolescents with cancer to drive the advocacy in their own nations to achieve the indicators related to children and adolescents with cancer.

Here are the indicators related to childhood cancer:
  • 2nd indicator of 25% overall mortality reduction of cancer incidence by type of cancer per 100,000 population;
  • 18th indicator of availability and affordability of quality, safe and efficacious essential NCD medicines, including generics, and basic technologies in both public and private facilities;
  • 20th indicator of access of palliative care assessed by morphine-equivalent consumption of strong opioid analgesics (excluding methadone) per death from cancer.
Below are useful documents related to Childhood Cancer Advocacy:
Resolution by ECOSOC download resolution
press release
NCD plan 2012 – 2020 by World Health Organisation (WHO) download
Final Comprehensive Global Monitoring Framework for NCDs download
Childhood Cancer Institution | CCI Affiliates
CCI - Childhood Cancer International