End of year message from chair and vice-chair | CCI - Childhood Cancer International
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End of year message from chair and vice-chair

Here you find a end of year message from Carmen Auste (CCI chair) and Ruth Hoffman (CCI Vice-chair):
In a few days, it will be a series of celebrations across various countries and religions. We wish you all the best of the season and a glorious and wonderful time as you reconnect and spend time with families and friends.

18th of December 2014,

Dear Collegues and Friends,

In a few days, it will be a series of celebrations across various countries and religions. We wish you all the best of the season and a glorious and wonderful time as you reconnect and spend time with families and friends.

During this time, we usually take the opportunity to count our blessings and be grateful for all the blessings and joys of the year.

In CCI, we take this opportunity to express our gratitude and thanks to individuals who have made noteworthy and significant contributions towards pursuing our shared goals and desired outcomes.

We take this opportunity to express our wholehearted thanks and gratitude for the exemplary and commendable leadership of Kenneth Dollman (CHOC Childhood Cancer Foundation South Africa), who has completed his tenure as Chairperson of CCI and Benson Pau (Pau Kwong Wun Charitable Foundation, Hong Kong), who has completed his tenure as Vice Chairperson.

During their term, Kenneth and Benson invested their energies in strengthening the regional presence of ICCCPO and enhancing ICCCPO’s credibility by pursuing the acquisition of status with the World Health Organization. CCI has now almost completed the first phase of acquiring recognition of informal working relationships and will be moving on to applying for formal status.

In 2013, Kenneth and Benson enabled ICCCPO to formalize its long term relationship with SIOP. They also made possible the presence and participation of the WHO Assistant Director General for Non Communicable Diseases, Dr. Oleg Chestnov, in the SIOP and ICCCPO International Conferences. This was a major achievement and sent a clear and loud message to the international community that childhood cancer is a recognized public health issue that requires priority and attention.

Kenneth has also travelled extensively in Africa to engage, invite as well as help organize new parent organizations. In the most recent Africa Regional Conference, Kenneth made sure that indigenous and traditional healers had a voice in the forum so that they could lend their support and endorsement of parent led initiatives in childhood cancer.

Over the past 9 years, Benson, first as Chair then as Vice Chair, has expanded the organizational footprints of ICCCPO and broadened the network of connections of ICCCPO. He has also made sure ICCCPO was represented in major, groundbreaking UN events. He has grown the network of parents organizations in China as well as the ICCCPO member network in Asia. Benson has been a most worthy and laudable ambassador for ICCCPO.

Benson will complete his tenure in the Board in 2015 but will remain as Regional Head for Asia while Kenneth is concurrent Regional Head for Africa and will complete his board tenure in 2017.

We also thank two other Board Members who have contributed immensely to the growth of ICCCPO over the past many years and have now completed their board tenure. Anita Kienesberger of the Österreichische Kinder-Krebs-Hilfe in Austria and Edith Grynszpancholc of the Fundación Natalí Dafne Flexer in Argentina .

We remember and recognize Anita for her tireless and dedicated work in the EU, her special attention and assistance to the groups in Eastern European countries, her effective networking and collaboration with the SIOP Nurses group and her wholehearted mentorship of the ICCSN. The innovations and breakthroughs of the EU team and their ability to engage and involve multiple stakeholders, including the EU Parliamentarians, showed us the possibilities of what can be achieved with a team of focused, passionate stakeholders.

We appreciate and applaud Edith for her passion and drive to expand our alliances and partnerships beyond our traditional partners; to grow ICCCPO membership in Central and Latin America and to broaden its base of support among different sectors and stakeholder groups. Edith leaves us with many good practice models of multi-sectoral and multi-stakeholder collaborative initiatives on how to ensure that every child with cancer has better access to affordable, quality care and improved availability of affordable childhood cancer drugs and pain medicines. While their presence in the Board will surely be missed, we know that their work in their continents/regions will continue to strengthen our global CCI presence.

CCI is also very fortunate that our past Chairpersons and board members have continued to actively support the organization and the board. We especially thank Jesús Mª González Marín of Spain, our first Chairperson for ICCCPO, who together with his organization, successfully hosted the 20th

ICCCPO anniversary celebration in Valencia, Spain. We also thank Val Figliuzzi of Canada who provided assistance during the recent international conference in Toronto Canada.

We recognize our Past Chairpersons Marianne Naafs-Wilstra (the Netherlands) and Simon Lala (New Zealand) who have been unwavering in their guidance and assistance to our previous and current board. Their presence as advisors have provided the necessary institutional memory and link to the past as well as enriching and deepening perspectives. We are most grateful for their always finding time for CCI.

Gerlind Bode of Germany is another of our dedicated and kindhearted advisors to whom we owe a debt of gratitude. She crafts and ensures that our newsletter comes in regularly to inspire and inform you of recent updates in our organization and among our members. She also has helped make possible many of our informational materials.

We also thank and applaud the generosity of spirit of three passionate, creative and young survivors who drive and lead the survivors activities in Europe and internationally . Michaela Willi, Sabine Karner and Meike Naafs have helped to grow and expand the ICCSN as well as provided support for other key ICCCPO activities.

Most importantly, we are grateful for all that you, your teams and your organizations have done this year for children and adolescents with cancer, the survivors and their families. We recognize that many of you work as volunteers in extremely challenging and difficult circumstances. We salute you as heroes for children with cancer, the survivors and their families.

Once again, we wish you, your families, staff and volunteers a happy, wonderful season of love and joy. We look forward to welcoming an exciting New Year, full of possibilities and opportunities for working and interacting more with all of you!

Carmen Auste, Philipines

Chair of CCI

Ruth Hoffman, USA

Vice-chair of CCI

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CCI - Childhood Cancer International