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CCI (formerly ICCCPO) works to build a world-wide community of childhood cancer organizations representing families of children with cancer and childhood cancer survivor groups. We share information and experience in order to improve access to the best possible treatment and care for children with cancer everywhere in the world. Complete the form to learn more.

European Commission announces the first 23 European Reference Networks for rare diseases (ERNs) – A milestone for 30 million patients in Europe!

The European Commission today announces the first 23 European Reference Networks for rare diseases (ERNs). This momentous step comes after years of
collaboration and efforts between rare disease patients, clinical experts, and policy makers in EU Member States, at the European Commission and the European Parliament to bring the ERNs to fruition.

Click on the link to read the document (pdf-format): ERNs Press Release

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