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CCI (formerly ICCCPO) works to build a world-wide community of childhood cancer organizations representing families of children with cancer and childhood cancer survivor groups. We share information and experience in order to improve access to the best possible treatment and care for children with cancer everywhere in the world. Complete the form to learn more.

Life after cancer: More information needed

On 26th of November 2011 the Irish Conference on Survivorship after Cancer during Childhood and Adolescence took place in Dublin.

As childhood cancer is much better treatable these days than many years ago, the survival rates have improved considerably, and thus a constantly growing number of young people are survivors of a malignant disease in childhood or adolescence. The estimated numbers vary between 1 in 700 to 1 in 800 adults (age 25-40) are today survivors of a malignant disease in childhood. While most of them are healthy and able to live a very ‘normal’ life, a minority suffers from more or less severe late effects of the treatment.

A group of pediatric oncologists, statisticians, radiologists, psychologists and other professionals as well survivors formed in ‘PanCare’ a (basically European) working group to investigate the long term problems. With the financial support of the EU (European Union), the five-year long project ‘PanCareSurFup’ will investigate many of the late-effects of cancer treatment of children and adolescents and will develop general guidelines for better follow-up. As part of this project a conference on survivorship issues was organized in Dublin mainly for Irish families with a child/adolescent with cancer. The full-day program included many interesting talks on different issues, such as dates on survival rates, information about risk factors of the different therapies, medical implications, issues on healthy life style and information about psychosocial support. Many questions were raised by the audience and the wish for more informative events like this one was expressed.

For more information see also: www.pancaresurfup.eu

Survivorship_Ireland

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