Survivors – a future global network
The survivors are an important group within CCI. Not only they are a sign of hope for the newly diagnosed, but they are young people with specific needs that must be addressed.
Although there are already local and regional groups of survivors, in most of the countries / regions there is no structure that survivors can turn to for support. So, after a first meeting in Ottawa with some survivors from different countries, the Board felt the time had come to set up a global structure that would allow survivors from all over the world to exchange knowledge and experiences.
We need, therefore, to identify dynamic survivors interested in building this global network. The CCI member organizations are a source of privileged information, as they are the ones who will be able to identify the best people for this important task. We therefore ask for your collaboration. All information can be given or requested my email: jb@acreditar.pt (Joao Braganca on behalf of the group).
What is this group and its objectives? From the survivors themselves:
To share knowledge and resources between survivors, patients, parents
and health personnel.
To create awareness about childhood cancer survivorship .
To discuss and find solutions for different realities, global survivorship
challenges and global opportunities.
To create a sense of belonging.
To create a platform for survivors to inspire each other.
To help provide peer support and empowerment.
To increase the quality of life & quality of care for those affected by
cancer.
To promote an equitable health care system for all.
We are already working with a group of survivors from all over the word, and our medium-term objective is to have a local structure of survivors at least in every country where CCI has a member organisation.